Panelists Susan Love, Megan O'Boyle, Kathy Giusti, and attendees Kathy Hudson, Bray Patrick Lake

The inaugural conference on Precision Medicine was held at the Joseph Martin Conference Center at HMS in Boston on June 24th and 25th, 2015. Attended by over 400 participants from academia, industry, government and the community, this first installment focused on changing medicine from the bottom up. The meeting included expert panels on how we are going to pay for precision medicine, on the ethical and regulatory challenges, delivering precision medicine to the point of care, and several inspiring examples of patient-driven successes.

Keynote Speakers included:

Matt Might, PhD, University of Utah
Linda Avey, Co-founder & CEO, We Are Curious
Arlene Sharpe, Microbiology & Immunology, HMS

Matthew Might set the stage with a compelling story of his own search for answers for his son’s rare disorder, a theme echoed by patient advocates Susan Love, Kathy Giusti, Megan O’Boyle, Sonia Vallabh and Eric Minikel, as well as by noted panelists with keen insights into the legal, technical and cost issues facing patients with challenging medical problems.

The conference was sponsored by the Big Data to Knowledge Center of Excellence at DBMI (Patient-centered Information Commons Standardized Unification of Research Elements, or PIC-SURE), Aetna, and Elsevier.

Further reading

Listening To The Voice Of The Patient In Precision Medicine by DBMI Visiting Scientist David Shaywitz

Precision Medicine 2015 Patient Driven, a conference about implementing a patient-centered research cohort by PIC-SURE Lead Science Officer Valerie Florance

Power to the people: Citizen science meets precision medicine for rare disease by Nancy Fleisler for Vector, Boston Children's Hospital science and clinical innovation blog

Watch the conference videos

Have questions? Contact us at precisionmedicine@hms.harvard.edu