Patient Driven
Overview
The inaugural conference on Precision Medicine was held at the Joseph Martin Conference Center at HMS in Boston on June 24th and 25th, 2015. Attended by over 400 participants from academia, industry, government and the community, this first installment focused on changing medicine from the bottom up. The meeting included expert panels on how we are going to pay for precision medicine, on the ethical and regulatory challenges, delivering precision medicine to the point of care, and several inspiring examples of patient-driven successes.
Opening Keynote speaker Matthew Might set the stage with a compelling story of his own search for answers for his son’s rare disorder, a theme echoed by patient advocates Susan Love, Kathy Giusti, Megan O’Boyle, Sonia Vallabh and Eric Minikel, as well as by noted panelists with keen insights into the legal, technical and cost issues facing patients with challenging medical problems.
The conference was sponsored by the Big Data to Knowledge Center of Excellence at DBMI (Patient-centered Information Commons Standardized Unification of Research Elements, or PIC-SURE), Aetna, and Elsevier.
Further reading
Listening To The Voice Of The Patient In Precision Medicine by DBMI Lecturer and former Visiting Scientist David Shaywitz